Useful Links

Links to useful external sites for support, information, equipment and more.

SUPPORT

Genetic Support Network of Victoria

Charcot-Marie-Tooth Association USA

Charcot-Marie-Tooth United Kingdom

WELLBEING SUPPORTS

National Disability Insurance Scheme (NDIS)

Aged Care Information

THERAPY & EQUIPMENT PROVIDERS

Novita Children’s Services South Australia

Independent Living Centre NSW

Montrose Therapy and Respite Service

Technology for Ageing & Disability  TAD SA

TAD NSW

Brazier Mobility – Vehicle modifications (SA)

Willshire Mobility SA

MEDICAL & RESEARCH

Kids Neuroscience Centre Australia

​ANZAC Research Institute: Northcott Neuroscience Laboratory and CMT Diagnosis and Support Clinic   

Hereditary Neuropathy Foundation (USA)

​Rare Diseases Clinical Research Network: Inherited Neuropathies Consortium   

Muscular Dystrophy NSW: e-learning Understanding Neuromuscular Disorders