CMT Australia

About Us

OUR WHY

The Charcot Marie Tooth Association Australia Inc (CMTAA) began as a support group in 1988, then was incorporated in 1990 as a Registered Charity.

The motivation to establish CMTAA was to meet the need for people with CMT to communicate with each other and provide mutual encouragement. 

Over the years we have slowly evolved and are now moving forward at an unprecedented pace.  In 2018, the National Committee proposed the Association become known as CMT Australia, this change was accepted at the 2018 National AGM.

Raising Awareness of CMT

We are:

  • Engaging with people who have CMT, their families, carers and the community. This is done via National Office contact, face to face support gatherings, holding our annual National Conference, social media – Facebook and Instagram, publishing our Newsletter three times a year and this website.

  • Engaging with Medical and Allied Health Professionals in every State to raise their awareness of the condition, and to inform them of options they can assist their patients with to enhance their quality of life.

  • Using data compiled for the Reducing the Health Burden of Charcot-Marie-Tooth in Australia Report to raise awareness with Members of Parliament, and educate them about the need for assistance for those who have CMT to access services they need to enhance their quality of life.

  • Creating Research Grants and attracting applications to fund research into CMT, plus continuous engagement with the research community.

  • Acknowledging and promoting September: International Awareness Month for CMT.

It is vital that people with CMT focus on what they CAN do.

We aim to enhance the quality of life for people with CMT

Our objectives are:

  1. To obtain and distribute information related to the welfare of people with Charcot-Marie-Tooth disease.
  2. To provide assistance and support to people with CMT, their families, friends and carers.
  3. To identify and promote the development of support facilities and services for those impacted by CMT.
  4. To increase CMT awareness in the broader community, particularly amongst Medical and Allied Health professions; and the abilities and requirements of people with CMT.
  5. To encourage and facilitate research into CMT, and possible cures.
  6. To establish alliances with organisations and groups with similar or complimentary objectives.
  7. To assist in the establishment of similar associations in our region. 

CMT Australia Vision:  A World without CMT

CMT Australia Mission

To unite all those in Australia who are impacted by CMT, the most common inherited neuropathy;  empower those with CMT to live their lives to the  fullest; and to encourage our community to support CMT Australia in its goals.