The Charcot Marie Tooth Association Australia Inc. (CMTAA) began as a Support Group in 1988, and was incorporated in 1990 as a registered charity.
The motivation to establish CMTAA Inc. was to meet the need for people with CMT to communicate with each other and provide mutual encouragement.
Over the years we have slowly “evolved” and are now moving forward at an unprecedented pace. In 2018, the National Committee proposed the Association become known as CMT Australia, this change was proposed and accepted at the 2018 National AGM.
Raising Awareness of CMT
Engaging with persons with CMT, their families, carers and the community. This occurs with contact with the National Office, face to face support gatherings, holding of a National Awareness day, on social media – Facebook and Twitter, publication of our Newsletter three times a year and this website.
Engaging with Medical and Allied Health Professionals in every State to raise their awareness of the condition, and to inform them of strategic options they can assist their patients with to enhance their quality of life.
Using data compiled for the ‘Reducing the Health Burden of Charcot-Marie-Tooth in Australia’ Report to approach Members of Parliament to raise awareness, and of the need for facilities to assist persons with CMT access services they need in one place to enhance their quality of life.
Through our Research Grants, attracting applications to fund research into CMT and engaging with the research community.
Acknowledging and promoting September: International Awareness Month for CMT.
It is vital that people with CMT focus on what they CAN do.
We aim to enhance the quality of life for people with CMT.
Our objectives are:
- To obtain and distribute information related to the welfare of people with Charcot-Marie-Tooth disease.
- To provide assistance and support to people with Charcot-Marie-Tooth disease, their families, friends and carers.
- To identify and promote the development of support facilities and services for those impacted by Charcot-Marie-Tooth disease.
- To increase Charcot-Marie-Tooth disease awareness in the broader community, particularly amongst Medical and Allied Health professions; and the abilities and requirements of people with Charcot-Marie-Tooth disease.
- To encourage and facilitate research into Charcot-Marie-Tooth disease, and possible cures.
- To establish alliances with organisations and groups with similar or complimentary objectives.
- To assist in the establishment of similar Associations in our region.
CMT Australia Vision:
A World without CMT
CMT Australia Mission:
To unite all those in Australia who are impacted by CMT, the most common inherited neuropathy; empower those with CMT to live their lives to the fullest; and to encourage our community to support CMT Australia in its goals.