CMT: Why Feet Matter
This resource is the first in a series that has recently been developed by Prof Josh Burns and the Centre for Research Excellence in Neuromuscular Disorders.
The practice brief has been developed to provide guidance on foot care for individuals with Charcot-Marie-Tooth disease (CMT).
The resource is especially developed for frontline allied health professionals such as Podiatrists, Physiotherapists, Orthotists and Pedorthists.
CMTPedS Calculator – A Smart Calculator for CMT
Charcot-Marie-Tooth disease (CMT) is the most common inherited peripheral nerve disorder, with an incidence of 1 in 2,500.
The CMTPedS Calculator is a reliable and valid clinical tool used to measure disability in children with CMT
The tool enables precise assessment of baseline performance and disease severity, monitoring of outcomes in studies over time, and responses to current or novel therapeutics.
The CMT Pediatric Scale equipment and training resource kit is available to download.
Break-through Guide to Orthopaedic Surgery for CMT
The Charcot-Marie-Tooth Association (CMTA) has allowed us to share with you a first-of-its kind article entitled, “A Consensus Statement on The Surgical Treatment of Charcot-Marie-Tooth Disease.” Published in the Foot and Ankle International, this publication delineates the best surgical practices for people with foot deformation due to CMT.
The article is the product of an one-day meeting attended by thirteen experienced board-certified orthopedic foot and ankle surgeons and a neurologist specialising in CMT disease.
Spearheaded by orthopedic surgeon Dr. Glenn Pfeffer, this group of surgeons defined consensus terminology, agreed upon standardised templates for history and physical examination and recommended a comprehensive approach to CMT foot surgery.
We hope you will find this article to be invaluable in your CMT surgical journey. Please share this article with your CMT health care professionals, especially your orthopedic surgeons, who will benefit greatly from this new and useful resource.
A Guide to Physical and Occupational Therapy for CMT
We thank CMTA USA for their permission to use this publication in Australia.
Background
Under the leadership of world-class CMT clinicians, including Professor Joshua Burns from Australia, CMTA USA sponsored a workshop and brought together physical and occupational therapists from the CMTA USA’s Centers of Excellence to collaborate on a guide to help therapists better understand and manage CMT.
The first-of-its-kind publication outlines the assessment and care of people with CMT.
As CMT manifests so differently from person to person, this guide, based on research, experience and patient input, will optimise collaboration between physical and/or occupational therapists and patients, helping ensure the best possible care for specific CMT management.
The goal of CMT Australia is to provide you with the vital information you need to assist people with CMT to lead the best lives possible. This invaluable document will assist you to safely make educated decisions regarding a rehabilitative plan of action to empower people with CMT to maintain function and quality of life.
