Information, Tips and Guides for Parents of Children with CMT and Parents with CMT

Welcome to the Parents space. A collection of tips and hints, informative documents, and links for Parents of children with CMT and Parents with CMT
Parent of child with CMT
Info for parents of Children with CMT
Useful documents and links to help guide parents and their childs journey with CMT
CMT Aussie Kids is a program run by CMT Australia for children and youth with CMT. A Feature of this program is the annual camp, bringing together kids Australia wide to have a space to be with others who understand.
My Child has CMT – Booklet explaining CMT to families and children – we thank CMTUSA & CMT UK for this valuable resource for families.
Teens guide to CMT – Good documents for teens to help them with their CMT Journey
School and CMT
Useful guides for school
Some handy guides to help your child navigate school years with CMT
A teachers guide to CMT – this is a handy document to give to your childs school, outlining what CMT is, how it may affect your child and the possible accomodations which may be needed to enable your child to fully engage at school.
School Support – Article from Winter 2022 CoMmuniTy newsletter by Jillian Critchley parent of child with CMT 1a
Role of the School Counsellor – Article in the Summer 2021 CoMmuniTy newsletter by Jillian Critchley parent of child with CMT 1a
More Information
Articles, tips, links for parents
Complete Guide to Driving with Disability – This resource is a must have for info on all aspects regarding driving with a disability, from Assessments to Modifications. Many thanks to Total Ability for allowing us to advertise this resource.
Does this define me? – Article published in the CMT ComMuniTy News Autumn 2021, written by 18 year old living with CMT1a – An inspirational read.
Parent with CMT
Hints tips and more
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