Information, Tips and Guides

Welcome to the Parents space.  A collection of tips and hints, informative documents, and links for Parents of children with CMT and Parents with CMT

Parent of child with CMT

Info for parents of Children with CMT

Useful documents and links to help guide parents and their child’s journey with CMT

CMT Aussie Kids is a program run by CMT Australia for children and youth with CMT.  A Feature of this program is the annual camp, bringing together kids Australia wide to have a space to be with others who understand.

My Child has CMT – Booklet explaining CMT to families and children – we thank CMTUSA & CMT UK  for this valuable resource for families.

Teens guide to CMT – Good documents for teens to help them with their CMT Journey

School and CMT

Useful guides for school

Some handy guides to help your child navigate school years with CMT

A teachers guide to CMT – this is a handy document to give to your child’s school, outlining what CMT is, how it may affect your child and the possible accommodations which may be needed to enable your child to fully engage at school.

School Support – Article from Winter 2022 CoMmuniTy newsletter by Jillian Critchley parent of child with CMT 1a

Role of the School Counsellor – Article in the Summer 2021 CoMmuniTy newsletter by Jillian Critchley parent of child with CMT 1a

More Information

Articles, tips, links for parents

Complete Guide to Driving with Disability – This resource is a must have for info on all aspects regarding driving with a disability, from Assessments to Modifications.  Many thanks to Total Ability for allowing us to advertise this resource.

Does this define me? – Article published in the CMT ComMuniTy News Autumn 2021, written by 18 year old living with CMT1a – An inspirational read.

Books for all

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Children to 9 years.

Beau and his new AFO – a book to make it easier for kids to understand the “why” behind the instructions they receive so they can take ownership of their AFO and its care.

Frankies New shoes – Follow along with Frankie as she goes through the steps of getting new ankle foot orthoses or AFOs!

Brace yourself for another day – Peaches, the book’s main character has muscular dystrophy and wears leg braces. She imagines a world without leg braces and eventually realizes how helpful her braces really are.