Video, Presentations and Interviews

GENERAL AWARENESS

CMT Awareness
Thank you CMT UK for this outstanding CMT Awareness video. This short video explains what Charcot-Marie-Tooth disease is and how it affects people.  CMT Australia is privileged to be a part of the International CMT community working together to promote awareness of CMT.

Former President Messsage
Message from the Former President of CMT Australia

CMT AUSSIE KIDS

Overview       2019      2017       2016       2015       2014     2013       2012
Please note the 2015 video has no sound.

INTERVIEWS, PROMOTIONS AND PODCASTS

  1. Interview with Dr Che Fornusek
    An inspiring interview with Dr Che Fornusek regarding the importance of sport for people with disabilities.
  2. Hit the radio: Open House Podcast.
    The Open House program on Hope Media interviewed the husband of a new mum who has CMT and also the former President of our CMT Australia.  Listen in to hear how this young family is dealing with CMT related mobility challenges plus CMT Australia developments to support those with the disease.
  3. Celebrating Microscopes
    Northcott Neuroscience Lab opened their doors to those with CMT and their families.

NATIONAL AWARENESS DAY SEMINARS
Available to Members only

2020 National CMTAA Awareness Day Webinar
Prof Marina Kennerson: Developing Therapies for CMT Challenges and Research update
Dr Alison Shield: CMT and Medication Saftety
Dr Che Fornusek: Cross Sectional Exercise Training and Resistance Training Study Results

2019 National CMTAA Awareness Day Seminar – Melbourne
Prof Garth Nicholson: Progress in CMT Research, discovery to treatments
Debbie Phillips, Brotherhood of St Laurance – Local area coordination and navigating the NDIS
Jillian and Peter Critchley: Opportunities for youth with CMT
Prof Josh Burns: Developments in the management of CMT
Dr Rachel Kennedy: Exercise, physical activity and CMT
Julieta Mateo, ATM Practitioner: Improving life through exploring better movement
Eliza Hull, ABC Producer:  A personal journey
Seminar: Q & A Session

2018 National CMTAA Awareness Day Seminar – Hobart
Hamish Anderson, Physiotherapist: Balance, exercise and fatigue
Prof Greg Peterson:   Drug therapy for neuropathic pain
Prof Joshua Burns: Developments in the management of CMT
Seminar: Question Time
Jillian & Peter Critchley: CMT Aussie Kids
Prof Garth Nicholson, Neurogeneticist:  CMT Research
Darren Pereira, Orthotist – Advances in orthotic management to facilitate better standing balance and walking efficiency

2017 National CMTAA Awareness Day Seminar – Sydney
Prof Joshua Burns: Developments in management of CMT
Karl-Heinz Schott: Footpower sensomotoric orthoses and CMT
Dr Scott Denton: Reducing the health burden of CMT
Mandy Hanna: Occupational Therapist Role
Prof Garth Nicholson: CMT Research
Dr Alison Shield: The impact of medications on CMT

NATIONAL AWARENESS DAY SEMINARS
Available to all

2016 National CMTAA Awareness Day Seminar – Brisbane
Awareness Day: Seminar Overview
Ernie Tye, Pedorthist: Custom appliance application based footware
Darren Pereira: The use of orthotics in managing CMT
Prof Garth Nicholson: Research history and new developments
Dr Desmond Soares: Surgical procedures to benefit hand, foot and ankle problems
Question time:  Q & A Session

2015 National CMTAA Awareness Day Seminar – Sydney
Darryl & Robin: Thank you
Dr Scott Denton: Reducing the health burden of CMT
Dr Alison Shield: Medication safety and CMT
CMT Aussie Kids: Young CMTers
Dr Manoj Menzies: CMT in childhood, trials and interventions
Michael Carroll: My life with CMT
Prof Garth Nicholson: CMT research, history and new developments

2014 National CMTAA Awareness Day Seminar – Sydney
Prof Garth Nicholson: Hereditary peripheral neuropathy: history and new developments
Prof Joshua Burns: Developments in the management of CMT
Dr Andrew Wines: Surgical management of foot problems in CMT
Lyndal Douglas, Genetic Counsellor: Preimplantation genetic diagnosis
Dr Alison Shield: Medication safety and CMT
Dr Eppie Yiu: Peripheral nerve ultrasound in paediatric CMT 1a
Lois Tonkin: Principles of pain management
J Gates, L Huxley & G Fernandez: It’s all about alignment – posture and balance workshop
CMT Aussie Kids: Young CMTers update

2013 National CMTAA Awareness Day Seminar – Sydney
Research in Progress: cost of cmt, exercise for kids, shoes for adults, resistance training
Rebecca Howard, Occupational Therapist: Technology to improve quality of life
Joshua Burns, PhD: Developments in managing CMT
Katrin Wegener, Cert Pedorthist CM: What does CMT affect?
Dr Alison Shield: Medications and CMT
Prof Garth Nicholson: Understanding hereditary neuropathy, history and new developments.

2012 National CMTAA Awareness Day Seminar – Sydney
CMT Expert Panel: Q & A Session
Peter Richards, Horsebreaker: My Life with CMT
Dr Helga Hemberger, Clinical Psychologist: How we can cope with CMT
Dr Alison Shield: GDAP1 – role in CMT?
Dr Che Fornusek: Exercise and Sport with CMT
Prof Joshua Burns, Podiatrist: Management of CMT, an Update
Prof Garth Nicholson: CMT and Exomics, what next?