RESOURCES FOR MANAGING CMT

Information to help manage your CMT

PUBLICATION: A Guide to Physical and Occupational Therapy for CMT

A guide to Physiotherapy and Occupational Therapy for CMT

We thank CMTA USA for their permission to use this publication in Australia.

Under the leadership of world-class CMT clinicians, including Professor Joshua Burns from Australia, CMTA USA sponsored a workshop and brought together physical and occupational therapists from CMTA USA’s Centres of Excellence to collaborate on a guide to help therapists better understand and manage CMT.

They created this comprehensive guide.   

This first-of-its-kind publication outlines the assessment and care of people with CMT. As CMT manifests so differently from person to person, this guide, based on research, experience and patient input, will optimise collaboration between physical and/or occupational therapists and patients, helping ensure the best possible care for specific CMT management. 

A hard copy can be ordered here 

PUBLICATION: Moving Forward with CMT

Moving Forward With CMT – First Edition (2016)

Articles include an introduction to how the name originated, through to the latest research. Plus a review of the symptoms, ways of diagnosis, who you can turn to for advice, and what CMT Australia is doing to keep you up-to-date and ‘moving forward’.

Moving Forward With CMT – 2nd Edition (2024)

Updated articles ranging from an introduction to how the name originated, through to the latest research.
We review the symptoms, ways of diagnosis, who you can turn to for advice, and what CMT Australia is doing to keep you up-to-date and ‘moving forward’.

PUBLICATION: CMT Survivor’s Guide Australia

This booklet has been reproduced and adapted for Australia from the CMTA CMT Survivor’s Guide.

The booklet contains Seven tips to live your life your way.  We thank CMTA USA for their kind permission to allow us to produce this booklet for Australia.

VIDEO SERIES: CMT Exercises

Created by Physiotherapist Rebekah Lee, the CMT Exercise focuses on functional improvement for those living with CMT.

The Balance Walking Stick Exercises for CMT demonstrates how using balance walking poles can dramatically increase the confidence, fitness, and mobility of people living with CMT.

WEARABLE TECHNOLOGY: Physical therapy

Who said physical therapy was boring?

LusioMATE is a gaming therapy app that connects to wearable sensors fitted almost anywhere on the body, it’s:

  • Low cost and low risk. Can be funded via NDIS Assistive Technology, or from your core funding budget within the following subcategories of your NDIS funding: Consumables, Capacity Building, Personal Mobility, Assistive Equipment Recreation.
  • Is fun and engaging gaming therapy, and its remote monitoring and prescription capability, make it uniquely placed to help motivate individuals to complete physical therapy programs, achieve their movement goals, and result in better health outcomes.

Read more and access the Members Only Discount

DOCUMENTS: For Youth

 The Teachers Guide to CMT is handy to give to your child’s school, it helps the school to plan for adaptions which may be required to enable your child to succeed in the school environment.

Being a teenager can be tough at the best of times. It can get even trickier when you have CMT.  If you’re a teenager with CMT the Teen’s Guide to CMT is for you!

The CMT Aussie Kids Program has activities run for youth affected by Charcot-Marie-Tooth disease. 

DOCUMENTS: For the Work Place

 The Workplace Guide to CMT is a handy conversation starter to give to your Employer, it helps you and your Employer to plan for adaptions which may be required to enable you to succeed in the work environment.  This is a general advice document to help begin the process.