2019

Recipient: ANZAC Health & Medical Research Foundation
Project: Sponsorship of one speaker to September Oceanic Asian Conference
Amount: $500

Recipient: Prof. Joshua Burns, University of Sydney Faculty of Health and Sciences
Project: Implementation of internationally endorsed best practice guideline trial
Amount: $18,000

Recipient: Prof Garth Nicholson, Molecular Medicine Laboratory
Project: Hereditary Sensory Neuropathy Type 1 Treatment Trial
Amount: $ 19,392

Recipient: Prof Marina Kennerson
Project: Investigate and identify structural variation in Hereditary Neuropathy families
Amount: $ 20,000 (Over $10,000 for this project raised through GiveNow fundraiser)

2018

Recipient: Dr Brent Neumann
Project: Funding for chemicals/reagents
Amount: $12,500

Recipient: A/Prof Marina Kennerson, Anzac Research Institute
Project: Motor neuron differentiation| Drug libraries | High content imaging facility
Amount: $14,000

2017

Recipient: Prof  Joshua Burns
Project: Exercise in Medicine Project – salary costs to further this study
Amount: $16,000

Recipient: Dr Alison Shields, University of Canberra
Project: Medication Study with Pharmacists
Amount: $5,500

2016

Recipient: Associate Professor Marina Kennerson, ANZAC Research Institute
Project: Setting up the iPSC methods in their laboratory with Mr. Cutrupi knowledge
Amount: $14,000

Recipient: Prof. Joshua Burns, University of Sydney Faculty of Health and Sciences
Project: Filament for a 3D printer
Amount: $9,722

2015

Recipient: Associate Professor Marina Kennerson, ANZAC Research Institute
Project: Symposium keynote speaker airfares
Amount: $2,000

Recipient: Dr. Brent Neumann
Project: Using Cultured Primary Motor Neurons and Peripheral Nerves to Study the Consequences of ATP7 Mutations in Distal Hereditary Motor Neuropathy
Amount: $12,500

2014

Recipient: Dr Eppie Yiu – Department of Neurology, Royal Children’s Hospital Melbourne
Project: High resolution 18MHz Ultra Sound Probe to collect nerve abnormalities in CMT children and Families
Amount: $10,420

Recipient: Dr. Alison Shields, Faculty of Health University of Canberra
Project: Investigating the Safety of Medications for CMT Patients
Amount: $5,000

Recipient: Prof Garth Nicholson, Molecular Medicine Laboratory
Project: Supply of L Serine for HSN Pilot Treatment Trial
Amount: $10,000

Recipient: Prof Joshua Burns, University of Sydney Faculty of Health and Sciences
Project: Reducing the Health Burden of Charcot-Marie-Tooth Disease in Australia
Amount: $60,000

2013

Recipient: ANZAC Research Institute
Project: Using Cultured Primary Motor Neurons and Peripheral Nerves to Study the Consequences of ATP7A Mutations in Distal Hereditary Motor Neuropathy
Amount: $12,000

Recipient: Exercise, Health and Performance Group, Faculty of Health Sciences, University of Sydney
Project: Pilot Study of Progressive Resistance Training for Sedentary Adults with Charcot- Marie- Tooth
Amount: $10,093

Recipient: University of Sydney’s Faculty of Health Sciences
Project: Reducing the Health Burden of Charcot-Marie-Tooth Disease in Australia
Amount: $75,000 

2012

Recipient: Sue Mahat,  Faculty of Health, University of Canberra
Project: Research into the role of GDAP1 in understanding the development of CMT
Amount: $4,000

Recipient: Institute for Neuroscience and Muscle Research
Project: Nicolet Viking Quest 2 Channel NCS System to reach a genetic diagnosis in children with unclassified CMT
Amount: $12,500

Recipient: ANZAC Health & Medical Research Foundation
Project: Using Modern Genomics to Identify Novel Genes for CMT Neuropathy
Amount: $12,500

2011

Recipient: ANZAC Health & Medical Research Foundation
Project: Contribution to research by Prof. Garth Nicholson
Amount: $12,000

Recipient: Institute for Neuroscience and Muscle Research
Project: Contribution to research by A/Prof Josh Burns
Amount: $10,000

2010

Recipient: ANZAC Health & Medical Research Foundation
Project: Contribution to research by Prof. Garth Nicholson
Amount: $10,000

Recipient: Institute for Neuroscience and Muscle Research
Project: Contribution to research by A/Prof Josh Burns
Amount: $10,000