An opportunity to assist researchers through participating in research studies for children in Melbourne and Sydney and a research study for adults in Sydney.
Melbourne
Children’s Neurosciences Centre, The Royal Children’s Hospital, is seeking children and adolescents aged 4 to 18 years of age who are able to walk at least 75 metres and have a diagnosis of Duchenne or Becker muscular dystrophy (DMD/BMD) or Charcot Marie Tooth disease (CMT).
The study will be investigating footwear, fatigue and falls in paediatric neuromuscular disease.
See the PDF for additional information and/or to participate please contact Rachel Kennedy on 03 9345 4287.
Sydney
Currently 23 children with CMT aged 6 – 17 years have been recruited for a new research study investigating strength training.
The 2-year trial will investigate if foot and ankle strength training is an effective and safe treatment to improve strength, walking ability and quality of life in children affected by CMT aged 6 – 17 years.
Another 37 children still need to be recruited for this research study. Please look over the PDF for more details. The venue is the Children’s Hospital at Westmead as well as a home-based training program with a Physiotherapist.
For additional information and/or to participate please contact Amy Sman on 02 9845 3004 or the CMTAA National Office on 02 9767 5105.
Sydney
The opportunity for adults to be involved in a research study investigating the benefits of resistance training for people aged 18 – 60 years with CMT Type 1 and Type X.
The venue is the Cumberland Campus, University of Sydney, Lidcombe.
Please look over the PDF for more details. For additional information and/or to participate please contact Ms Nidhi Saigal on 02 9351 9138 or the CMTAA National Office on 02 9767 5105.
