RESOURCES FOR MANAGING CMT

Information to help manage your CMT

A Guide to Physical and Occupational Therapy for CMT

We thank the CMTA USA for their permission to use this publication in Australia.

Under the leadership of world-class CMT clinicians, including Professor Joshua Burns from Australia, CMTA USA sponsored a workshop and brought together physical and occupational therapists from CMTA USA’s Centres of Excellence to collaborate on a guide to help therapists better understand and manage CMT.

They created this comprehensive guide.   PDF available to download

This first-of-its-kind publication outlines the assessment and care of people with CMT. As CMT manifests so differently from person to person, this guide, based on research, experience and patient input, will optimise collaboration between physical and/or occupational therapists and patients, helping ensure the best possible care for specific CMT management. 

Hard copy available to order 

Publications

Moving Forward With CMT – First Edition (2016)  – articles ranging from an introduction to how the name originated, through to the latest research.
We review the symptoms, ways of diagnosis, who you can turn to for advice, and what CMT Australia is doing to keep you up-to-date and ‘moving forward’.

Publications

Moving Forward with CMT – Second Edition (2024) – articles ranging from an introduction to how the name originated, through to the latest research.
We review the symptoms, ways of diagnosis, who you can turn to for advice, and what CMT Australia is doing to keep you up-to-date and ‘moving forward’.

CMT Exercise Video Series

Created by physiotherapist Rebekah Lee, the CMT Exercise Video Series focuses on functional improvement for those living with CMT.

Balance Walking for CMT

The Balance Walking for CMT Video Series demonstrates how using balance walking poles can dramatically increase the confidence, fitness, and mobility of people living with CMT.

LusioMate – Wearable technology

See LusioMATE in action

Special offer for CMT Australia members

Who said physical therapy was boring?

Not anymore with LusioMATE,  the gaming therapy app that connects to wearable sensors which fit almost anywhere on the body, offering amazing flexibility, to suit your goals.

LusioMATE is

  • Low Cost and Low Risk with the NDIS and can be funded via, Assistive Technology, or from your Core funding budget within the following subcategories of your NDIS funding: Consumables, Capacity Building, Personal Mobility, Assistive Equipment Recreation.
  • Is fun and engaging gaming therapy, and its remote monitoring and prescription capability, make it uniquely placed to help motivate individuals to complete physical therapy programs, achieve their movement goals and result in better health outcomes.

With access to the LusioMATE ecosystem you can take complete control over your physical therapy.  Invite your clinical team to be a part of your LusioMATE experience and they can have access to your progress 24/7 to monitor, prescribe movement goals and give feedback as is necessary. They can be a part of the continuum of your care beyond just the face-to-face appointment.

Why LusioMATE?

  • Motivates achievement of movement goals
  • Drives therapy program adherence
  • Small and portable – can be used anytime, anywhere
  • Remote monitoring and prescribing
  • The physical therapist in your pocket

Documents for Youth

 The Teachers Guide to CMT is handy to give to your child’s school, it helps the school to plan for adaptions which may be required to enable your child to succeed in the school environment.

Being a teenager can be tough at the best of times. It can get even trickier when you have CMT.  If you’re a teenager with CMT the Teen’s Guide to CMT is for you!

The CMT Aussie Kids Program has activities run for youth affected by Charcot-Marie-Tooth disease. 

Documents for Workplace

 The Workplace Guide to CMT is a handy conversation starter to give to your Employer, it helps you and your Employer to plan for adaptions which may be required to enable you to succeed in the work environment.  This is a general advice document to help begin the process.