DiS - Rare is a study that aims at generating insights into digital health solutions for patients with neuromuscular diseases (NMDs). Your participation in this study will help to create digital solutions that are patient and provider friendly. The first part of the study [...]

Friday 7th October, Join Dr Winnie Tan, recipient of Research Grant from CMT Australia and hear of the research these funds are assiting, ask questions and take a guided tour of the Lab.  This event is available to 20 visitiors on site, and will [...]

Do you/your child wear ankle-foot orthoses and are you based in Sydney? If yes, the team at The Children’s Hospital at Westmead would love to hear from you ASAP! You can take an active role in designing better AFOs for children. They are looking [...]

The University of Sydney is currently conducting a study to identify current physical activity levels and barrier to exercise in people with Charcot-Marie-Tooth disease (CMT). The study aims to make a valuable contribution to the development of exercise programs in the CMT Community.  Have [...]

The University of Sydney is currently conducting a study to assess the exercise habits and potential barriers to exercise participation in people with Charcot-Marie-Tooth disease. This study aims to make a valuable contribution to the development and implementation of exercise interventions in the CMT [...]