Committee Member: Jillian Critchley
Hi, I’m Jillian or as my younger adult daughter describes me… the black sheep of the family being the only one not with CMT in our family. My husband Peter and both daughters, Matilda and Eleanor, have CMT 1a and have been involved with CMT Australia for many years.
One of my passions is the CMT Aussie Kids, a program my husband, Peter, and I established in 2012 just for young people with CMT. To see the changes in some of the kids after they attend the camp is amazing, and soooo satisfying. They start off shy, insecure, unsure of their abilities and leave confident and optimistic that even though some days with CMT can get you down, there is always tomorrow and it can be a better day if you want it to be. (Especially if you have like minded friends by your side… or at least on Zoom or social media).
Supporting families of kids with CMT goes hand in hand with our work with the CMT Aussie Kids Program. Finding what works, what you need and developing strategies to support your kids with CMT can be tough. I find it satisfying to provide opportunities for parents to get to know others in their local area and across Australia, New Zealand and the world. To chat and explore the good times and stresses, the joys and successes.
I can’t personally experience the many frustrations CMT brings every day, but I can get involved to help people dealing with these frustrations.
In another life I am an early childhood teacher and run my own business as a Family Day Care Educator, working from home with 4 children under the age of 5 years. My musical side leads me to be involved in the Kirrawee Gang Show, a Scout and Guide stage show. Of course I do try to have some quality family time in amongst everything else.